I am quite fed up of curved balls. It seems that Erin is destined to be a regular client of the NHS. The poor girl has already put up with far more than most her age. As if DDH and spending 24 weeks bound by spica isn’t enough, a diagnosis of hypermobility syndrome followed. This makes everything so much harder for her little body. Whenever I find us on an even keel it seems that isn’t the path she is supposed to be treading. I am finding it increasingly difficult not to scream out loud at the unfairness of it all.
Sunday saw Erin gasping for breath and breathing too fast. Her little stomach rising and falling was a sure sign that breathing was not coming easily. Something I take for granted. I can’t imagine how it feels to be so constricted. To feel that suffocating feeling to feel scared. Erin wasn’t talking much, concentrating her efforts on trying to fill her lungs with oxygen.
At the hospital Erin’s levels were low and she needed both nubulising and oxygen. The relief for her young body was temporary and withing the hour it was needing more help. Steroids were administered and a chest xray ordered to ensure that she wasn’t battling pneumonia. Thankfully that came back clear. Yet another xray on her little body. Xrays that we are supposed to be avoiding as she has had so many over the years.
Now I am more aware than ever that asthma is not to be belittled, its nasty and tries at times to grip my girl. We will fight back like she always does.
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