DDH or developmental dysplasia of the hip is part of my everyday vocabulary. It is a word or condition I had not come across until Erin was 11 months. Unfortunately for us it then took another 11 months before diagnosis. She was failed you see. Failed by her newborn health checks, failed by health vistors, GP’s and all the other medical teams that came into contact with her including physios. The knowledge about DDH just isn’t there, checks carried out by the most junior of doctors who don’t have the experience to detect instability in newborn hips.
I am bitter about it.
My daughter has suffered because of it.
Seven times in theatre before the age of three.
Yet a paediatrician consultant diagnosed her in the waiting room. He watched her stand and hobble towards him and he knew. He was shocked that nobody else knew. He told me that an investigation would be carried out. I don’t know if there was – I was certainly never part of it. We were then fast tracked to her surgeon, a man who Erin regards as a hero. The man who over time has spent 12 hours operating on her little bones. The man that continues to watch Erin develop and grown and to Xray her each year until she stops growing.
Yet there is still so little help out there. So little for parents to teach them this new vocabulary, to educate them in the practical and emotional side of ddh. However a new book has been written by my friend Natalie. Natalie, like me, is passionate about DDH. With a strong family history and a son about to undergo yet more treatment Natalie penned the book so many need.
Cast Life is available from Amazon at £9.99 it is a book for everyone wanting to know more about DDH. Erin and I are featured as a case study and I have talked to Natalie throughout her writing of the book. I personally know many of those children mentioned as they are parents like me. I want to thank Natalie of getting the word out. When people find out more and spot the symptoms of DDH because of blogs and books it can only be a good thing. I know parents and carers are searching for this information, I know that from the hits on my blog posts, the emails I often get asking for support. Thankfully this resource will help fill the gap.